Went in for a just in case colonoscopy/endoscopy for my lung NETs, my specialist just wanted to make sure but didn’t expect there to be anything, just dotting the i’s, is how she put it. Turns out I have a big old tumor in my stomach all the other tests missed, the blood tests, the PET scans, the specialised NET PET scan all missed. Apparently stomach tumors don’t always show up on PT scans and my CT scans were only of my chest. So now yet again I sit and wait for official biopsy results. I hate the waiting.
God I hate the waiting too. Everything takes a month. EVERYTHING. Make an appointment for a scan. A month out. Wait for results. A month out. Make an appointment to plan what to do about the results. A month out. Put the plan into action. A month out.
They move at the speed of light when the cancer is identified and there is something they can do about it. Everything else is waiting.
Hard not to, but I had one found too. Was told it’s actual pretty common to miss and find later. Also told that we’d be surprised how many people have them and live their lives without ever knowing we had it or affecting them. Got it removed, no spread, and some radiation. All clear a few years later.
Hopefully yours is in that category and you’ll be alright. Good luck comrade
